lupus

WHAT ARE YOU EVEN DOING, BODY?!

There is no right or wrong way to react to being diagnosed with a disease. Everyone lives differently and everyone grieves differently. When I was diagnosed with a disease I held onto that diagnosis like it was a life vest and I was thrown overboard into an unforgiving ocean because that is honestly what it […] Read more…

The Magical Healing Power of Stories*

*Books won’t actually physically cure you of a disease. “We tell ourselves stories in order to live.” – Joan Didion I have kind of a love/hate relationship with books about illnesses. I flock to them like a seagull flocks to a McDonald’s parking lot, but most of the time I come away feeling disappointed, probably also like […] Read more…

Lisa Tries Vlogging!

I have been trying to come up with ways to reach a broader audience (like people who don’t want to read 7 page long blog posts) so I decided to turn some of those blog posts into videos. I know that there are a million vlogs out there, but I really got the push to […] Read more…

The Brain Fog Blog

I’m currently sitting in my armchair with a heating pad wrapped around my hip, an ice pack velcroed around my neck, and a large “cooling pad” tucked into that neck ice pack to form a makeshift cone of chillness, which is kind of like a dog cone but for human adults whose musculoskeletal systems want to […] Read more…

You’re Not Making Up Your Chronic Illness

An edited and much less sarcastic version of this essay was published last year on xoJane. You can find it here: http://www.xojane.com/issues/chronic-illness-isnt-made-up Yesterday was Rare Disease Day so I spent a lot of time reading stories and watching videos by people who were diagnosed with rare diseases. Across the board, most people had something in common: […] Read more…

Why I Talk So Openly About Being Sick

One of my blog readers messaged me earlier this week to tell me that my blog has helped her (you da best). She told me that she has a lot of trouble talking openly about her illness and how it affects her, and because I am so open about my own health it has given her a […] Read more…

Having a Chronic Illness is Not Romantic

I’m a worrier. I worry about how clean my house is, I worry about all the books on my bookshelf that I haven’t read yet, I worry about whether or not I’m a good friend, I worry about what my third grade teacher thought of me. So as a blogger, naturally there are bloggery things […] Read more…

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