The bed in that photo is mine. It’s where I spend most of my time. It’s where I’ve spent most of my time for the last 6 years or so. Well, we’ve gotten a new bed since then, but I just swapped one memory foam surface for another and carried on like before. I lay […] Read more…
Editor’s Note: Ooh typing out editor’s note makes this seem very fancy. May is Ehlers-Danlos Syndrome Awareness Month, so I asked my followers what topics they wanted me to discuss about EDS or chronic illness/disability. A bunch of people asked me to write about how to be a good friend to someone who has EDS […] Read more…
Lately, I have been thinking a lot about loss. I have been feeling a loss that I couldn’t quite put my finger on. Being chronically ill and becoming disabled has brought about some losses I never expected to feel, or to feel this hard. And there always seems to be another one around the corner. I try to live in the moment, be positive and grateful (all of those characteristics everyone wants to see in a sick person), but some days I’m hit head on with that very real feeling of “what if this never happened to me?” Dreadful, I know. Read more…
Last month the wonderful lovely people from Rollz International gifted me a Rollz Motion, which is a 2-in-1 rollator/wheelchair combo. They gave it to me in exchange for some social media posts and an honest review on my blog. So this is me doing that! Everything I am about to say about the Rollz Motion […] Read more…
Well well well… What a fortnight it has been, my friends. For years now my body has been doing that weird thing where it just suddenly becomes allergic to something. It happened with the random two month anaphylactic nut allergy. It made me lactose intolerant after my body drank too much Ensure when my stomach […] Read more…
When I first started using a cane, I was super squirrelly about it. I didn’t really want to be seen with it. I started out just using it in my house where no one would see me. Then I worked myself up to using it in places I didn’t think I would run into anyone […] Read more…
I’m thinking back on 2018. As someone with a chronic illness that gets a little worse each year, 2018 obviously had a high number of sick days for me. A lot of chronically ill people call these sick days the “bad days” and the days when they are feeling less symptomatic the “good days.” I […] Read more…
*Hahaha jk THE BEFOREMATH As you are probably aware, I was diagnosed last December with gastroparesis after many months of extreme stomach and back pain, nausea, vomiting, and general feelings of an alien baby trying to rip itself out of my abdominal area. Gastroparesis is a condition that affects the movement of the muscles in […] Read more…
*CW: ableism, self-doubt, self-esteem issues, mental health, chronic pain. Some days I’m funny and I write funny things on my blog. And some days I do the opposite of that, like right now. Some days I feel like a failure. Some days I feel like a fraud. Some days I feel okay. Some days I […] Read more…
There is no right or wrong way to react to being diagnosed with a disease. Everyone lives differently and everyone grieves differently. When I was diagnosed with a disease I held onto that diagnosis like it was a life vest and I was thrown overboard into an unforgiving ocean because that is honestly what it […] Read more…