I have been trying to come up with ways to reach a broader audience (like people who don’t want to read 7 page long blog posts) so I decided to turn some of those blog posts into videos. I know that there are a million vlogs out there, but I really got the push to do one for myself after watching my spoonie friend Kathleen from Green Eggs and Spoons branch out into the vlogging world.  You should check out her website because she’s awesome possum.

So last week I broke out the crappy 10 year old Macbook, turned on the webcam and recorded my most popular blog post, How To Explain Lupus to People with Functioning Immune Systems. And so far it has gotten 27,000 views on Facebook. So needless to say I’m rather impressed by the amount of shares and comments on a poorly made video with really awful quality. Here it is so you can see for yourself:

And now, after one video, I’m famous. It’s hard to leave the house without a disguise, and myself and Feyonce definitely have to make some sacrifices (like having personal lives) but I hate to be one of those celebrities that says it’s so hard being famous, so I will just suck it up and let the paparazzi in for now. (I am joking really hard right now).

I had a lot of fun making the first video, so I bought a fancier webcam and made a second one which I released on Facebook yesterday! I’m still not a pro at editing or figuring out how to make some of the audio not sound like I’m standing next to a plane about to take off, but baby steps! This second video is in response to emails and comments I get from people who think I’m one of the most inspirational people ever just because I haven’t given up on life after receiving a diagnosis like Lupus. I don’t think I am an inspiration for that reason. It’s not inspirational to just exist as someone who is sick or disabled. Anyway, I could rant for 6 days straight about the topic, so I will shut up for now and let you watch the video, if you so choose.

I plan on doing a bunch more videos in an attempt to get better at this. It’s quite a learning experience. So far, the most important thing I have learned is that I can’t stand listening to myself talk and that one corner of my mouth always has smeared lipstick on it no matter how hard I try to fix it. Oh, I’ve also learned that I’m not above tagging Selena Gomez in all of my videos in hopes of getting more views. Apparently I’m awful and that isn’t beneath me. Also, it doesn’t work.

One video that I will be doing in the near future is a collaboration with my awesome friend Lynn who also has lupus – we want to answer any questions you may have about lupus or life with a chronic illness. So if you think of anything please let me know in the comments! And if there are other topics you would like me to address via mediocrely made videos, let me know that too! I love suggestions! Hooray!

3 Comments on Lisa Tries Vlogging!

  1. Marlies Vonn
    April 9, 2017 at 10:18 am (6 years ago)

    Wow!! Your first video is really great! Dialogue is very engaging especially 7:38 to the end. You have a great personality and fantastic speaking skills and that is half the battle right there. I have been completely immersed in YouTube for the past couple of months learning how to make videos on a $0 budget and also with CFS. Also learning trends and what is happening politically with YouTube right now. I’m sure that as you go you’ll learn a ton as you’re a smart cookie. I’ve made a total of 10 very silly videos and if you have any questions don’t hesitate to ask!

  2. Kim
    May 19, 2017 at 7:08 pm (6 years ago)

    Hi Lisa! I heard your story on CBC Radio today and thought I’d have a look at your blog. Thank you for shedding light on Lupus and how it personally affects you in your everyday life. I do have friends that have Lupus as well and it’s interesting to hear (but not in a good way) just how many ways it can affect a person.
    I personally have tried to figure out my own health issues with chronic tiredness and muscle weakness. Blood work always comes back normal (a good thing) but sometimes I feel like the doctors are missing something. I have been diagnosed with Hypothyroidism and have had for years now. It’s more of a pain than anything. Constant blood work to check T4/TSH levels, B12 issues. What I have yet to figure out is that if my bloodwork is good it almost is irrelevant cause I’m am always tired and no amount of sleep helps. I can safely say that I have never had a refreshing nights sleep. But I digress. Sorry to vent.
    I love your videos and may I say, you just have the most awesome personality (quirky, but in a good way).
    I also am a chocolate addict and I have a girl crush on Mindy Kaling. I would love to be her friend . You probably know this next season is the final for The Mindy Project but she said is producing a new show ‘Champions’ for the fall. Sadly she is only making guest appearances.

    Thank you again Lisa for sharing and I look forward to more blogs.


  3. Crys
    August 4, 2017 at 8:36 pm (6 years ago)

    I agree with your videos a lot.

    One of the things people say to me, along the lines of what you said, is “You look well.” It always irks me! It’s like people don’t have time anymore to ask how you actually are.

    These are many of the experiences I face.


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