Content Warning: body image issues, eating disorders, internalized ableism. I am enough. That’s a sentence I’m trying so hard to embrace and to believe. I’ve felt glimpses of it in the past. I’ve had good weeks and sometimes even months where I could say those words and they felt like truth. But something happened along […] Read more…
The bed in that photo is mine. It’s where I spend most of my time. It’s where I’ve spent most of my time for the last 6 years or so. Well, we’ve gotten a new bed since then, but I just swapped one memory foam surface for another and carried on like before. I lay […] Read more…
I’ve been doing a lot of reflecting this month. I’ve been noticing how much calmer my mind is when I just occasionally check social media and feel no obligation to constantly refresh apps like instagram and facebook. Which has got me thinking a lot about the advocacy volunteer work that I do. Being an advocate […] Read more…
Editor’s Note: Ooh typing out editor’s note makes this seem very fancy. May is Ehlers-Danlos Syndrome Awareness Month, so I asked my followers what topics they wanted me to discuss about EDS or chronic illness/disability. A bunch of people asked me to write about how to be a good friend to someone who has EDS […] Read more…
Lately, I have been thinking a lot about loss. I have been feeling a loss that I couldn’t quite put my finger on. Being chronically ill and becoming disabled has brought about some losses I never expected to feel, or to feel this hard. And there always seems to be another one around the corner. I try to live in the moment, be positive and grateful (all of those characteristics everyone wants to see in a sick person), but some days I’m hit head on with that very real feeling of “what if this never happened to me?” Dreadful, I know. Read more…
You know what? This is all really hard sometimes. I joke around a lot. I look for humour in every situation I find myself in. I smile and laugh and reassure everyone that I’m fine. And in general, I am. I am very proud of how I handle what comes my way. But sometimes I […] Read more…
One of my favourite instragrammers, Julian Van Horne (@thedisabledhippie) recently started a hashtag that I am loving. It’s #DifferentAidsforDifferentDays and it was created to help explain and celebrate the nuance of disability. The point of the hashtag is to normalize the idea that a lot of disabled people use a variety of different mobility aids […] Read more…
A few weeks ago we packed our bags, hopped in a truck with our best friends Pamela and Finn, and headed to Trinity for the weekend. I just recently found out that there are two Trinitys in Newfoundland, and it’s really important to specify which one you’re in when you have to call an ambulance […] Read more…
Last month the wonderful lovely people from Rollz International gifted me a Rollz Motion, which is a 2-in-1 rollator/wheelchair combo. They gave it to me in exchange for some social media posts and an honest review on my blog. So this is me doing that! Everything I am about to say about the Rollz Motion […] Read more…
Well well well… What a fortnight it has been, my friends. For years now my body has been doing that weird thing where it just suddenly becomes allergic to something. It happened with the random two month anaphylactic nut allergy. It made me lactose intolerant after my body drank too much Ensure when my stomach […] Read more…