spoonie

I`m breaking up with Chocolate.

If you have read my previous posts you know that I have recently been struggling with my weight due to high doses of prednisone. I confessed to a doctor that I didn’t want to take it anymore because it was making me gain weight and that was probably the worst thing in the world to […] Read more…

Writing Illness as Humour

“I knew, of course I knew, that life is always more complicated than our narratives.” – John Burnside, A Lie About My Father Writing an illness is hard. Writing an illness for the humour section is even harder. I am someone who prides herself on being rather breezy about the whole living with a chronic […] Read more…

Sometimes your dreams don’t come true.

We all spend our youth daydreaming about being movie stars, astronauts, or Nobel prize-winning scientists. We wax romantic about what it will be like when we are rich and our retweets reach the thousands. Usually our friends and family encourage us and tell us that those dreams are realistic, whether they actually believe that or […] Read more…

So apparently I’m allergic to nuts now.

I have never really had to worry about food allergies before. If I eat a kiwi my tongue gets swollen and sore but it’s really easy to avoid kiwi (even though it’s delicious) so I have always been able to galavant through restaurants and grocery stores and buy whatever the hell I wanted to buy […] Read more…

You must read “Awkward Bitch” by Marlo Donato.

About a month ago I ordered the book Awkward Bitch: My life with MS by Marlo Donato. This was back when we thought I had MS and I had decided to take a few steps to understand it better and to embrace that this could be my life and I thought that the perfect first step for me […] Read more…

Life Advice for the Chronically Ill

If you have a chronic illness or you are currently wading through the sea of specialist appointments that come with the diagnosis stage you should follow this one piece of advice: take someone to the big appointments with you. Especially take someone with you if you plan on getting information that can be overwhelming. I […] Read more…

Does this cane make me look fat?

I’ve recently been afflicted with a curious case of muscle spasticity. I have known for years that something has been ‘off’ with my body but in recent months my muscles have decided to dance and jump and tighten and loosen all on their own without letting my brain in on the routine.  My disobeying muscles […] Read more…

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