Ehlers-Danlos syndrome

The Path Where It Was Taking Me

Lately, I have been thinking a lot about loss. I have been feeling a loss that I couldn’t quite put my finger on. Being chronically ill and becoming disabled has brought about some losses I never expected to feel, or to feel this hard. And there always seems to be another one around the corner. I try to live in the moment, be positive and grateful (all of those characteristics everyone wants to see in a sick person), but some days I’m hit head on with that very real feeling of “what if this never happened to me?” Dreadful, I know. Read more…

ALERT – SAPPY AF NEW YEAR’S EVE POST AHEAD

I’m thinking back on 2018. As someone with a chronic illness that gets a little worse each year, 2018 obviously had a high number of sick days for me. A lot of chronically ill people call these sick days the “bad days” and the days when they are feeling less symptomatic the “good days.” I […] Read more…

A New Hope: Lisa’s Inspirational* Botox Journey

*Hahaha jk THE BEFOREMATH As you are probably aware, I was diagnosed last December with gastroparesis after many months of extreme stomach and back pain, nausea, vomiting, and general feelings of an alien baby trying to rip itself out of my abdominal area. Gastroparesis is a condition that affects the movement of the muscles in […] Read more…

WHAT ARE YOU EVEN DOING, BODY?!

There is no right or wrong way to react to being diagnosed with a disease. Everyone lives differently and everyone grieves differently. When I was diagnosed with a disease I held onto that diagnosis like it was a life vest and I was thrown overboard into an unforgiving ocean because that is honestly what it […] Read more…

The Brain Fog Blog

I’m currently sitting in my armchair with a heating pad wrapped around my hip, an ice pack velcroed around my neck, and a large “cooling pad” tucked into that neck ice pack to form a makeshift cone of chillness, which is kind of like a dog cone but for human adults whose musculoskeletal systems want to […] Read more…

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