Very catchy blog post title, wasn’t it?

Hi, hello. I’m not sure if you remember me because I have disappeared for so long, but my name is Lisa Walters. I own this blog. I am famous. Two of those statements are true and one is a lie. It is now up to you to decide.

My life has been very busy lately so I haven’t really had time or energy or the physical capabilities to sit down and write up a blog post in about 2 light years. My apologies. Maybe someday I will get back to a point where the intro to every one of my blog posts isn’t an apology about how long I have been absent from your lives. But until then, here we are again.

Luckily you will be able to sleep easier tonight because I am here now to soothe all of your worries, to remind you of my existence, and to tell you what’s up with me. I know my lack of posting has been troubling you for some time now, so you can rest easy now. I’ve got you, boo.

So, my life. Lots of things happening. Some good, some meh. Where do I even begin?!

JK I know exactly where.

It was a cold, blustery April afternoon. I was sitting at home in bed checking the real estate websites on my phone for the 30th time since waking. My legs were tired from having to walk up and down the 2 flights of stairs in our row house to keep answering the door or searching for mini eggs in the kitchen, and I was longing for a change. “Maybe today will be that day,” I told myself. “Maybe today will be the beginning of the rest of my life.” And I hit refresh on that realty webpage. Lo and behold, there it was: the house I knew I wanted to buy and cherish and raise puppies in. And buy it we did! Thus, April and May were very busy months full of buying a new house and selling our old home. We packed up our belongings (which is mostly just books and Star Wars bobble heads) and moved ourselves into a bigger, more accessible house.

We came upon this adorable split level home pretty much smack dab in the middle of all the geographical locations we frequent in St. John’s. When you enter the house there are a few stairs leading up to the main level but once you’re up there it’s smooth sailing. The main living area is open concept with a nice, wide hallway, and even has an accessible countertop in the kitchen where I can sit and prepare some meals. There is a path from the driveway along the back of the house with a ground level entrance to our kitchen if we should ever need to avail of that. It’s 3 bedrooms upstairs (one is slowly being turned into a “home office” for me which is mostly just a professional title for my “Pinterest worthy room where I can take all the pics for my Insta feed,” and where I will write greeting cards for my friends). Downstairs has a big rec-room for Matthew to hang out in and play his video games or watch tv or movies, as well as a nice laundry room where Matthew can do all of our laundry. There are several other rooms down there too but I won’t bore you with those details. Oh, we also have a big fenced backyard and two driveways now. We went from a very tiny townhouse with no driveway and zero property (we didn’t even own the front step) to this. I feel so lucky. My life is so much easier in this new home and it feels so great to live in a space that works for me. We even have enough space now that I can have more of the exercise equipment that is necessary for my physical therapy. It all makes a world of difference.

I have spent the last two months slowly decorating the upstairs so I will show you a few pictures below. It must be said that IKEA is now my best friend. Also, as you will also probably see from the photos, I have decided that instead of having human babies, I will just be a plant mom. I currently have 11 plant babies and I know you’re not supposed to have favourites, but I totally do. My fav is by far my giant Boston Fern. I spend a lot of time just sitting on my couch looking around at all my plants and feeling very proud. I don’t know how to feel about this new version of me. I think I like it, but also I think I’m really very close to waking up a 98 year old woman.

As far as my health goes, I have had some more ups and some more downs. My gastroparesis is getting much worse again, but my specialist is trying to hold off on another botox treatment until I can get a new gastric emptying scan done. Last year I went to the hospital for a day and ate some radioactive eggs and toast, and a machine was used to track how long it took me to digest that cold and dull breakfast. The only problem was, I had my botox treatment about a month before this test, so my stomach was working like a champ. My specialist now wants a more accurate baseline of how paralyzed my stomach is so we can finally have a real measurement of the success of the botox.

BUT I found out last week that I will be getting surgery at the end of August so I really need to get the botox procedure BEFORE the surgery so I’m not riding the barf train the entire time I’m recovering. In the meantime I’ve started back on the Ensure, but it basically upsets my tummy every single time I drink it now, so I’m currently at a stage where I’m not entirely (en)sure what to do. This week my idea seems to be the scientifically proven method of “try  to eat more food again and just hope that ignoring the gastroparesis will allow the food to digest” (spoiler alert – it’s a terrible idea and does not work and is not science).

How’s my back doing, you ask? Well first of all, thanks so much for your concern! My lower back does this fun thing now where it keeps getting swollen whenever I stand for longer than a few minutes or walk for longer than a few minutes. And then my legs get weak and feel like jelly. Sometimes I topple over like I’m a Jenga tower and sometimes I just say “oh my legs feel like jelly” and then continue about my day. My doctor is confused by this and can’t really explain it or fix it, so it seems to be something I just have to adapt to on my own. I’m very used to doing that, so luckily I am equipped for the challenge. #StrongIndependentWoman

My joints keep popping out all over the place like I’m a Mr. Potato Head toy. There’s nothing really new in that department. I’m still waiting to see the geneticist (it’s been two years now yaaaaay). Ehlers-danlos syndrome is still the name of the game. You are probably shocked that it hasn’t been changed again at this point, because I’ve set a precedent for holding onto disease names for less time than most Hollywood marriages. But it’s still EDS.

I have a new-ish thing where my vocal cords get really weak and fatigued if I talk for too long so I have to start getting physio for my vocal cords (science is so cool) and I’m technically not supposed to talk for long periods of time but as you can probably tell, I’m a long-winded human being and talking is one of my top three fav activities.

The swollen back issue and muscle fatigue has prompted me to invest in a pair of adorable pink forearm crutches, so I’ve totally upped my mobility aid game. I only use one crutch but it’s very comforting knowing I have the second one there if shit hits the fan and I need some extra support. I got together with my bestie Alex of Alex Stead Photography fame recently and she took some awesome and colourful photos of me rocking my crutches so I will also share a few of those now. Wow what a treat this blog post is for you. It’s like a sample platter of so many different things. You’re welcome.

Not much else is new at this point. I spend a lot of my free time reading so that I can blow my Goodreads 2018 Reading Challenge goal out of the water (76 out of 50 already woot woot). I also watch a lot of shows like World’s Most Extraordinary Homes. It’s been a relatively quiet month few months in the house, and I am really enjoying it. Moving was very physically exhausting on my chronically ill body, so I’m glad I finally have some down time to rest and just sit back and enjoy my beautiful new home.

I have lots of events and health related procedures in the coming months, so I will be sure to check back soon with another update. Maybe if I start doing this more regularly, every single blog post won’t have to be written as a novella.

Thank you for actually reading this far. You’re a brave soul.


Tired But Happy Plant Lady

11 Comments on Here are some things that are happening in my life right now

  1. Brenda
    July 26, 2018 at 10:51 am (4 years ago)

    I love that you’re a plant lady! Good luck with the upcoming procedures and enjoy the new house. Hopefully the St. John’s weather cooperates this summer and you can be an outside plant lady as well 🙂

  2. Sarah Balding
    July 26, 2018 at 10:52 am (4 years ago)

    We’re going to start the house search soon, so I hope I find that house to raise my two plant babies in soon. It’s a bit overwhelming to think about though. I think your house looks beautiful. Thanks for sharing! 🙂

  3. Ardra
    July 26, 2018 at 10:59 am (4 years ago)

    I’ve miiiiiisssssed your sassy voice. Happy to read this this morning.

  4. Nick Benjamin
    July 26, 2018 at 4:43 pm (4 years ago)

    A light year is a measure of distance not time, Liser. Brush up on your astrophysics.

    • damselinadress
      July 26, 2018 at 4:44 pm (4 years ago)

      Ugh WHATEVER 😛

  5. Krissy Gibbs
    July 28, 2018 at 10:36 am (4 years ago)

    “and a machine was used to track how long it took me to diagnose that cold and dull breakfast.”


    • damselinadress
      July 28, 2018 at 10:36 am (4 years ago)

      Yes, I meant digest.

    • damselinadress
      July 28, 2018 at 10:38 am (4 years ago)

      Fixed it! Haha

  6. Pat Berryhill
    October 6, 2018 at 6:28 pm (4 years ago)

    Hey Lisa, I have EDS. For your autoimmune stuff, look into Mast Cell Disorders. Let me know what you think.

  7. Shelley
    October 30, 2018 at 6:40 pm (4 years ago)

    I love GoodReads! It’s such a handy app to keep track of my reading hobby aka obsession. Lol I have not read as many books as you have this year but I’m working on it. Congrats on the new home. It’s lovely!!

  8. cathy sack
    December 2, 2018 at 9:25 am (4 years ago)

    just heard you on the sickboy podcast Lisa. Great work by all . We dont know what others are going through unless ther’s a safe space to explain. I appreciate this.


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