I feel like I start every blog post now with a line like “sorry for not blogging in approximately 75 months,” so this is no exception. It’s been a long time. My bad. Well also my immune system and connective tissues bad. And I’ll blame the awfulness that is winter on it too. Nobody wants to do things in the winter! Except maybe athletes who compete in the Winter Olympics. They got this “not letting Winter ruin your life” thing down pat.
I thought I would break the radio silence by providing you with an update on my gastroparesis and the botox treatment that I had back in September. I told you all that I would be giving regular updates but I’m awful so that obviously didn’t happen. Stop counting on me for things! You know I cannot be counted on! (I post way more regularly on Instagram and Facebook, just FYI)
It’s been 8 months since I had botox injected into my pyloric sphincter in an attempt to provide some relief from my gastroparesis symptoms. Here is a link to the original blog post about the procedure in case you need/want a refresher or if you actually have gastroparesis and would like more information on it. But before I give you an update here is a disclaimer: PLEASE remember that I am not a doctor, nor am I in any way shape or form any sort of medical professional who can provide you with answers about your illness. PLEEEASE keep that in mind when you read about the procedures I have. What works for me might not work for you. Also I cannot provide you with medical advice in the comments. The last thing you should ever want is medical advice from me. I have my Masters in Religious Studies. I can promise you I didn’t read a single medical text book during my university degrees. I use terms like “tummy working-ness.” A blog post with a term like “tummy working-ness” is not a good place to get medical information.
Now that we’ve established that…back to 8 months post-botox. The little information my specialist had on this procedure told us that I may get 6 months of decent tummy working-ness out of the injection, or I could even get up to a year. He basically shrugged and we crossed our fingers hoping for the best. There just isn’t that much information available on this exact procedure for this exact illness to make very sound predictions of the outcome. In a perfect world he wanted me to get a year or longer out of one injection, because the more injections I have, the quicker they will become less effective for me.
For the first 6 months I was flying high. I had SIGNIFICANTLY reduced my domperidon prescription intake (I’m talking going from 3 pills 3 times a day to 2 pills once a day at supper time). I was gobbling up whatever I wanted to gobble up. I was living the dream (if the dream is being able to eat food without getting violently ill afterwards)! Everything was awesome (jk I still had a million other health problems besides my gastroparesis)! I was invincible (haha more jokes)!
And then after the 6 month mark my body was like “hahaha we have successfully lulled Lisa into a false sense of security so it is now time to pull the rug from under her and make everything awful again! Evil laugh!”
Little by little, after the 6 month mark, my gastroparesis started getting worse again. Right now, at the 8 month mark, I am back up to taking two pills twice a day and getting sick almost half of the time I eat meals. No more workin’ on my night cheese for this moi. Now it’s time to slowly decrease my food intake and in time I will probably have to either get more botox before the one year mark or reintroduce some Ensure back into my tummy.
I am not due for another appointment with my specialist until September, and I’m trying really hard to make it that long, but I probably won’t be able to.
There is also the slight chance that this is just a gastroparesis flare up, as my specialist said that is a thing that can happen. And I was hopeful at first that it would go away in time and I would go back to being Lisa With The Good Pylorus but it’s been about 2 months of steadily decreasing tummy-workingness, so I’m not getting my hopes up about that anymore.
So that’s where I’m at. I have no regrets about getting the botox procedure. So far it has given me 6 months of way less pain and way more food. My weight stabilized. And even now, with it’s effectiveness on the decline, I am still way less miserable than I was pre-botox. I will definitely get it again when the time comes.
How much longer will Lisa be able to go before giving in to the botox?! Will her gastroparesis suddenly improve?! Will she need to up her medication dosage?! Will she ever eat a piece of cake again?! That much and MORE coming soon* in the next instalment of The Adventures of Lisa’s Digestive System! Stay tuned!
*Probably in another 75 months, let’s be honest. I’m really bad at this.