If you have a chronic illness or you are currently wading through the sea of specialist appointments that come with the diagnosis stage you should follow this one piece of advice: take someone to the big appointments with you. Especially take someone with you if you plan on getting information that can be overwhelming. I don’t plan on jam packing this blog full of life advice but I feel like this one is important, kids. I thought it was cool to go to this particular neurologist appointment alone because I’m very stubborn and that’s just how I roll. However, upon leaving the appointment, I realized that I not only forgot half of the things the doctor told me but I also realized there were some questions that I should have asked and didn’t.

Some of those questions in no particular order of importance:

1) Wait, parkinsonism? Who now? Huh?

2) Back up, we’ve disembarked the MS train? Because of the spine picture, even though doctors tell me it can take years for it to show up on your MRI and some people still have it? We sure?

3) How about if I find a book about MS and highlight all of the symptoms that I have? Or what if I write a diary about my symptoms?

4) New treatment eh? If I have to build up a tolerance for it does it mean I have to be weened off of it? If I mix it with tylenol will I develop a strange mutation that could turn me into a superhero?

5) We sure it’s not just some minor infection? Influenza? It’s not too late to revisit that.

6) How much do you get paid to do your job?

7) How expensive is the blouse you are wearing? Where did you get it?

8) Did you win that round of Plants vs. Zombies that kept me waiting?

9) Have you ever watched House?

See, that’s just a snippet of the questions I walked away with. I did not arm myself with as much information as I should have. If I have learned one thing in the last few months it is that everyone must take their own health into their own hands, BE AN ADVOCATE FOR YOUR OWN HEALTH, HUMANS! If there is a second thing I have learned it is to not eat 9 peanut butter cookies in ten minutes.

So bring a friend or a lover or a parent or a sibling or a notebook to those big appointments. Don’t walk away feeling more confused than you felt before your appointment. You deserve better than that. Unless you’re actually a total asshole and you are reading this.  Then that statement doesn’t apply to you. That’s only for the nice people. But thanks anyway for viewing my blog, I guess.

*awkwardly moonwalks away*

5 Comments on Life Advice for the Chronically Ill

  1. rupshabanerjee93
    December 19, 2013 at 2:51 pm (4 years ago)

    Just going through your blog and realizing, you and I might be soul-sisters 😀

    • lisermarie2013
      December 29, 2013 at 5:44 pm (4 years ago)

      Now I am going to read your blog to see if we are in fact soul sisters. Stay tuned for my response. Cliffhanger!

  2. Madeleine Mitchell
    December 19, 2013 at 5:34 pm (4 years ago)

    I just wanted to tell you that your candor, honesty and humor are incredible. My brother was diagnosed with MS last year after a great deal of medical drama, and the process of reaching a diagnosis was almost more stressful than receiving one. Your humor and perspective as regards your own experiences are extraordinary, and I appreciate not only that you’re sharing them, but the manner in which you’re doing it. 🙂

    • lisermarie2013
      December 29, 2013 at 5:43 pm (4 years ago)

      What a lovely comment to read! Thank you! I’m very sorry to hear that about your brother but I hope things go better for him now that he has the diagnosis! All the best!

  3. The Hook
    January 29, 2014 at 3:10 pm (4 years ago)

    Wonderful advice form a wonderful soul.
    Thank you.


Leave a Reply

Your email address will not be published. Required fields are marked *

Comment *