On Life

I Probably Took Health Insurance For Granted

For approximately two weeks I have been getting this weird rash thing on my face. It’s called a Butterfly Rash. That sort of name makes it sound like it would be kind of magestic and beautiful. Spoiler alert: it’s the opposite. And then to make matters worse today I started getting it on my hands too. So […] Read more…

My Nose Hurts.

So it’s two nights ago around midnight. I get the craving for a midnight bagel so I go upstairs and make one, slather on the cream cheese, bring it back downstairs and settle in on the couch to watch an episode of Supernatural with Roommate. Right before he turns the episode on (Houses of the […] Read more…

I’m Addicted to Facebook Slot Machine Games

So it’s 3:09 AM and I just woke up from slumber and realized that my belly felt really warm. With my eyes closed the first thing I could think was that this was some weird sort of nerve pain because I’ve been having many cases of OH-MY-GOD-MY-LIMB-IS-ON-FIRE-oh-wait-no-that’s-just-my-brain-itis lately. But it feels so warm and heavy, […] Read more…

You must read “Awkward Bitch” by Marlo Donato.

About a month ago I ordered the book Awkward Bitch: My life with MS by Marlo Donato. This was back when we thought I had MS and I had decided to take a few steps to understand it better and to embrace that this could be my life and I thought that the perfect first step for me […] Read more…

Life Advice for the Chronically Ill

If you have a chronic illness or you are currently wading through the sea of specialist appointments that come with the diagnosis stage you should follow this one piece of advice: take someone to the big appointments with you. Especially take someone with you if you plan on getting information that can be overwhelming. I […] Read more…

Waiting for a diagnosis is frustrating!

So it’s been a few weeks now since that whole “Parkinsonism” snaffoo (which I cannot technically refer to as a snaffoo because that would infer that it was all a total mix up and that hasn’t been established yet and the drugs are actually rather helpful but it just makes it easier for me to […] Read more…

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